I've decided to start this blog to tell our story of Polycystic Kidney Disease. I am in the middle of three generations of this horrible disease. My mother-in-law found out in her late 30's that she had PKD. She had a transplant and is doing well. My husband, 31, is now suffering with enormous kidneys, pain, and the effects of stage 4 kidney failure. Plus we now know that my seven year old daughter also has this disease.
I would love anyone to comment or email me at stevenssurvivingpkd@gmail.com.
Polycystic Kidney/Football
This is how big James' kidneys are. A regular kidney is the size of a fist.
How did you find out that L has it? I really hope things can get smoothed out quickly.
ReplyDeleteShe had an ultrasound and it showed at least one cyst in her kidney already.
ReplyDelete