The meeting with the transplant team was amazing. Everyone was really helpful and supportive. They seemed to really care about James and our family. They even had a special person that took Chris aside and spoke with him and told him what he can expect.
To those people transplants are everyday occurrences. Even though our family has been through this before, James is a different case and he is young. It is scary to think about what he is going to have to go through. It started yesterday. He had an outpatient surgery where they inserted a fistula into his arm for dialysis and one also in his chest. It's the start of more painful surgery, all starting in January.
I got the call today that says everyone is in on the plan. He will have a double nephrectomy in January and then 4-6 weeks later, after he has healed from that surgery, he will have the transplant. Once we have a specific date I will let you know.
Polycystic Kidney/Football
This is how big James' kidneys are. A regular kidney is the size of a fist.
playing the waiting game is hard. But the light is brighter at the end of the tunnel. I'm soo happy for you and your family. I'm praying everything goes smoothly. Good luck
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